While there have been developments towards living better with neurodegenerative diseases, there still is a lack of research for patients at moderate, advanced and end-of-life stages of disease progression. This call aims to enhance health and social care by assessing problems and needs of patients.
2 november 2022
13 december 2022,
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The aim of the call is to establish a number of ambitious, innovative, multi-disciplinary and multi-national expert Working Groups to discuss and align the specific needs of patients and currently available supply by the health and social care system, thereby outlining strategies to improve support for people at moderate, advanced and end of life stages of disease progression. Working groups should aim at pushing forward the conceptualization of the topics and envisage the provision of best-practice guidelines as well as methodological frameworks of value to a wider research community.
Working groups must focus on one or several of the following neurodegenerative diseases: Alzheimer’s disease and other dementias, Parkinson’s disease and PD‐related disorders, Prion diseases, Motor neuron diseases, Huntington’s disease, Spinocerebellar ataxia (SCA) and/or Spinal muscular atrophy (SMA).
A usual arrangement would entail small workshops at the beginning and end of the process, with sub-groups established to achieve more focused work through remote working. A joint workshop of all funded Working Groups is envisaged at the end of the funding period. Participation of all the funded project coordinators as a result of this call in the final workshop will be mandatory.
Funding may be used to conduct the workshops (e.g. costs related to accommodation and catering or temporary student staff) and to compensate for travel costs of the participants. It may also be used to utilize remote working (e.g. costs for tele-conferencing) as well as data exchange and harmonisation and dissemination. No funding is provided for direct research activities (e.g. costs for research equipment, salaries of investigators or scientific staff as well as student stipends).
Working Groups are to be research community-led and must demonstrate a clear scientific benefit from working across national borders. They should aim at pushing forward the conceptualization of such topics and envisage the provision of best-practice guidelines as well as methodological frameworks of value to the wider research community. The approaches should be integrative (clinical, epidemiological, social, legal) and have a strong focus on patient involvement throughout the planning and conduction of the project. Disability, gender and cultural aspects should be integrated, where possible.
Working Groups need to adequately involve patients, their relatives and carers and the public. This relates to the planning stage during the application as well as the later work of the panel. In the application it must be described how patients, their relatives and carers are involved and from where they are recruited.
Only transnational Working Groups are funded. A minimum of six experts, including the coordinator, from at least five different countries must be involved in a Working Group, which should not exceed 25 participants. Experts may join multiple Working Groups; however, they must not act as the coordinator of more than one Working Group.
A Working Group must be led by a coordinator from an institution being eligible for one of the participating funding organisations. Information on eligibility of institutions and expenses can be obtained directly from the respective funding organisation (contact details see section 8 of the call text).
Each Working Group can bid up to 50.000 € (plus institutional overhead) for support of its activities, which should normally not exceed a time period of up to 12 months.
You may submit your joint proposal on behalf of the entire Working Group via the JPND electronic submission and evaluation system no later than 12:00h C.E.T. on December 13, 2022.
The full call for expert Working Groups 2022 can be found on the call page for Expert Working Groups 2022: “Concepts for health and social care research for neurodegenerative diseases.”
ZonMw-programma: Joint Programming Initiative Neurodegenerative Diseases (JPND)
European website: JPND Research
Please contact us with any questions that are not covered in the FAQs. For general queries, please contact Abida Durrani (JPND@zonmw.nl). For questions that are related to submitting your proposal, please contact the JPND Joint Call Secretariat.