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For adequate diseasemanagement of COPD a holistic approach is essential. So, apart from smoking cessation and pharmacotherapy, non- pharmacotherapeutical interventions including diet and nutrition, an active life style and reactivation or pulmonary rehabilitation are important. However current care is felt suboptimal. Two of the key problems are: 1. Lack of insight in the real daily activities of patients and by this lack of insight in the impact of physical training on disease status and condition. This is highly relevant as the key element in disease management is to teach the patient adequate coping strategies with respect to his disease status, condition and daily activity pattern. However, with our already overburdened system it is not realistic to expect that this feedback can be provided face to face in the near future. 2. In chronic care settings, as is in COPD, integration of services beyond organizational borders is essential. This requiring adequate cross-organizational communication among involved members. In the COPD patients experience lack of inter-professional communication, necessitating them to act as care coordinator/indirect messenger between professionals. Based on their experience, partners in this project share the vision that care for the patients with COPD can be more efficient and effective when supporting this care by ICT. More specifically, it is expected that monitoring of the disease status at home with adequate communication and information sharing about the gathered data will increase the effectiveness and efficiency of care of patients with COPD. To realize this, this project focuses on: 1. An ICT infrastructure that enables gathering and secure transport of heterogeneous data, ranging from streams of on body sensor data, information provided by the patient, and information provided by the health care professionals in the different health care organizations involved. 2. A decision support system to support the interpretation of the large amounts of sensor data. 3. A dedicated COPD portal which is able to organize and present the heterogeneous data in an unambiguous way to the end user, which can be either the patient or the professional. 4. ICT disease management protocols for the developed services. This will focus on how this innovative service can be integrated in the present disease management system in the region. 5. Demonstration and testing the developed ICT supported service bundle in every day care as preparation for real implementation and roll out. The most important concrete results will be the demonstrator and the experience gained with it in a realistic care setting. The demonstrator integrates the following elements: - Quantitative monitoring of daily activity patterns and physical condition using on body sensors and feedback on this activity pattern and condition to reach a more active lifestyle. - A web based portal that creates the possibility to realize remotely supervised training and monitoring of disease status in the daily environment as well as to communicate and share this and other relevant medical (e.g. lung function parameters, heart rate, breathing frequency) with other care professionals and the patient. Partners in the project come from the region Twente and together form a multidisciplinary team with on one hand extensive expertise in research and development of ICT applications for the health care (University of Twente (UT) with two acknowledged institutes being Biomedical Research Institute (BMTI) as the Centre for Telematics and Information Technology (CTIT); Roessingh Research and Development (RRD) and Telemetics institute (TELIN)) and on the other hand long lasting experience in the treatment of patients with COPD (Medisch Spectrum Twente (MST) and Rehabilitation center het Roessingh (RRC)). In Twente there is a good cooperation between health care institutes, knowledge institutes and technology partners. CTIT was in two European projects the leading partner for the design and development of a mobile M-health service platform. The Remote Monitoring and Treatment group (RMT) is experienced in the whole monitoring/treatment chain, including the sensing, Body area networks, secure transmission via heterogeneous networks and the backend structure. RRD gained considerable experience with the development of ICT applications as well as with the demonstration of these applications in the every day care. TELIN has been involved in several data-integration projects and has extensive experience in research for ICT solutions that are appreciated by technology-unaware people. Most health care institutes in the region are, concerning the topic of ICT in health care, organized in IZIT. MST a major hospital has a long lasting extensive tradition in the field of innovative care for COPD and is treating over 1000 patients each year. At RRC there is multidisciplinary treatment program for patients with COPD.

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Projectnummer:
300050001
Looptijd: 100%
Looptijd: 100 %
2008
2011
Onderdeel van programma:
Projectleider en penvoerder:
Prof. dr. ir. H.J. Hermens
Verantwoordelijke organisatie:
Roessingh Research and Development